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Jack is a baby with a rare condition. Only 16 children have it. It affects his eyes and causes seizures. He may not live long.
Amanda and Nick want to meet other families with children like theirs. They found one parent with a child who has the same condition.
When Jack was a baby, his parents saw something wrong with his eyes and head. At the hospital, doctors found he had a problem with a gene.
Amanda and Nick want to make their home nice for Jack and help other families who may need support.
Jack's family makes happy memories with him. They focus on joy and not small worries, so Jack enjoys his time with them.
Jack is a baby with a rare condition. Only 16 children have it. It affects his eyes and causes seizures. He may not live long.
Amanda and Nick want to meet other families with children like theirs. They found one parent with a child who has the same condition.
When Jack was a baby, his parents saw something wrong with his eyes and head. At the hospital, doctors found he had a problem with a gene.
Amanda and Nick want to make their home nice for Jack and help other families who may need support.
Jack's family makes happy memories with him. They focus on joy and not small worries, so Jack enjoys his time with them.